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Monthly Archives: March 2012

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My Storied Surgical Scar

Seven days after my surgeon removed half of my pancreas, a golf ball-sized tumor, and my spleen I touched my belly for the first time. I was unable to feel the skin below the four-inch scar down to my bellybutton, and I was told that numbness would probably always exist. Nerves were most likely damaged irreparably from the incision. At the time I was disturbed by the lack of sensation, but I’ve grown used to it. That surgery gave me back my health, so if the only downside was that I couldn’t feel part of my belly, I’d live with it.

As it turns out there have been a number of other repercussions from my scar — mostly negative, but at least one positive.

On a superficial level, the scar developed a keloid. (Is that grammatically correct? It developed a keloid, as if a keloid is a noun? I’m going with it.) All four inches, which diagonally cross the front of my torso below my left ribs became hardened, raised, red, and itchy. My dermatologist performed a series of corticosteroid injections into the scar to fix the problem. Each shot produced searing pain which caused me to comment: “You know, my pancreas surgery had nothing on the pain from these shots.” I endured something like 30 injections total. Inexplicably painful.

After the keloid went down (I still have one red raised bump, BTW) I saw my surgeon for a follow-up visit, and he observed that the scar didn’t heal properly at all. Rather than a nice thin line which he hoped to give me by gluing the incision back together, my scar is wide and kind of wrinkly. Not pretty. Dr. F. said I should have a surgical procedure done where they cut out the old scar so a new one could form. Not gonna do that!

While my scar was keloiding, unkeloiding, and widening (See how I used keloid as a verb now? Is that grammatically correct?), I was trying to get my abdominal muscles to activate once again. I’m still working on that. My left abs continue to act as if I had a stroke four and a half years ago. I have to will them to work, and they can only do so much. My brilliant trainer James continues to give me exercises multiple times a week to wake them up — it’s working little by little.

Part of the challenge of reactivating the muscles is that I have adhesions inside my abdomen from the scar. Threads of stiff tissues have worked their way through my muscles inside my belly. My friend, massage therapist, chiropractor, healer, and, if I’m being completely honest, torturer Dr. Ginger Lowe works to loosen up the adhesions through deep deep deep tissue massage. Until she started digging in I had tremendous difficulty climbing hills on my bike, but she found adhesions holding my diaphragm back. After a session or two I felt like I could finally breathe — my lungs were able to expand fully for the first time in years. Until that experience I had no idea that my scar could have such hold on my health.

Beyond the breathing difficulty, I’ve had back pain for a few years now, which stems from my muscle weakness as well as the scar adhesions. My orthopedist explained that I have what’s called “QL Syndrome.” The quadratus lumborum is a large muscle that runs from the top of your hip up to your middle back on both sides, and you use it for everything — sitting, standing, walking, lifting, you name it. Because you use it constantly, it’s one of the most difficult muscles to treat once it becomes inflamed. It never gets a chance to rest; thus the term “syndrome.” James, Ginger, and I hope that by releasing the scar adhesions, and by strengthening my abdominal muscles, my QL muscle will finally be able to calm down. Until then I can at least know that my back pain is merely an annoyance rather than anything to worry about.

Returning to the superficial, next week I’m going to get my scar lasered. My doc tells me that it might take three to five sessions to get it looking good. Some people (crazy people she said) might even ask for ten treatments, but she said that she or I would be happy with up to five. She said I might even be happy with just one treatment. It alone will make the skin look less wrinkly, thin out the scar, and take down that one red bump I have left.

I think I might actually be fine with only one treatment. You see, I like my scar. I was sick for nine miserable years, and the surgery gave me back my life. When I see my scar I am reminded of the second chance I’ve received, and I’m proud of myself for persevering during that horrible decade of pain, nausea, vomiting, hives, hypoglycemia, and weakness.

Six months after my surgery when I was getting used to my new superhuman strength, Tommie and I participated in an Amazing Race-style scavenger hunt in DC. One of our challenges was to perform a handstand under a building named after a president. Tommie had never done a handstand before, but I had as a kid, and so I said I would try. He went to spot my legs but within seconds I was balancing on my hands under the Ronald Reagan Building. You can see a picture of it above. If you look closely, you’ll notice the four-inch scar tattooed across my belly.

I love that picture because it tells my story. I went through hell and back and came out stronger than before, and I have the battle scar to prove it. I’m ready to pretty it up a bit with the laser, but I plan on letting my scar stay with me for the rest of my journey. Here’s hoping it lives a long life all alone without any further surgical scars to keep it company!

Specialized Women’s Ride Day

(Courtesy of Spokes)

Ladies — Did you ride?

Yesterday women across the country hopped on their bikes and rode in events hosted by Specialized for Women’s Ride Day. I headed out with a friend to Spokes in Asbhurn to join more than 100 others and had a great time. It was my first just-for-girls event.

I’ve mentioned the incredibly fit chick who rode past me while I was barely able to walk my bike up a hill at my first Livestrong event and how she motivated me to get into shape like her. Well it’s hard for me to judge how I’m doing when I ride primarily with guys. At 103 pounds I’m tiny for women; forget about competing with men!

So I thought that by doing the Women’s Ride Day event I might be able to get a sense of how fit I really am now and also maybe make some new friends along the way.

Spokes offered two categories of rides: a fifteen-mile recreational ride and a twenty-five mile fitness/century-training ride. I chose the longer one. Within each category we were set off in groups of ten to twenty with a leader and a sweep (no woman left behind!).

The recreational riders ranged from first-time event riders needing assistance putting their helmets on correctly to avid townie riders to even one ElliptiGO rider. Everyone stared in amazement at her “bike.” My friend noticed that the ElliptiGO had carbon fiber components. Nice!

Our fitness ride was advertised as 14-16 mph, and honestly I wasn’t sure how I’d do with that. I’ve been riding my hybrid a lot more than my road bike this “winter,” and I thought maybe I’d be huffing to keep up. Not an issue. I fit right in.

Early on in the route the one man joining our crew told me he loved my bike — a Specialized Amira in black with neon green accents. Turns out our guy was the Specialized regional rep. It’s not a coincidence that this women’s day was a Specialized creation. I believe they make the best women’s bikes around. He asked if I am a sitting or standing climber and I mentioned that I have traditionally sat, but since losing so much weight this year I’m finding the need to stand more. He said that my bike is built for standing. So I played around with it on the few climbs we faced, and I loved it. I climbed with ease and with speed. A new technique to work on this season. Fun!

I usually feel a bit intimidated when I ride with a group and Tommie and I will break away from the pelaton to ride on our own, but I found yesterday’s environment to be so mellow and friendly that I stayed with the pack the whole time. I reconnected with one rider that I had actually met a couple years ago at the Spokes in Alexandria, and I chatted with others about things like pedaling techniques, clips vs cages, work, and family. One rider’s husband and children cheered from the side of the road as we passed them at mile twelve.

A number of the women asked if Spokes leads rides like these more often (they do!), and that made me smile. I hope that yesterday’s ride inspires them to get out on their bikes more. Cycling might have started out as a man’s sport, but it’s perfect for women too. And with the summer-like winter we’ve been experiencing in the northeast, there’s never been a better time to ride than now.

Tomorrow we join Tim Johnson on his Ride On Washington in support of Bikes Belong into DC. Stay tuned…

Is There a Nutritionist in the House?

One pound of sunchokes (A.K.A. Jerusalem artichokes) braised in one pound of butter with an added tablespoon of rendered pork fat amounts to only twelve grams of fat per serving. That’s what the Washington Post tells us today in its Sunchokes Braised in Butter recipe.

Really?

I’m not being snarky here, I’m just surprised and wonder if they’ve got the nutritional information correct.

The recipe says to submerge a pound of small sunchokes in four sticks of melted butter (along with some herbs, salt, and pepper), cover with aluminum foil and bake. When the chokes are tender, pull them out of the butter vat and then swirl them around in some heated pork fat on a hot skillet.

End result? According to the Post, two servings of: 290 calories, 5 g protein, 37 g carbohydrates, 12 g fat, 7 g saturated fat, 30 mg cholesterol, 150 mg sodium, 3 g dietary fiber, 0 g sugar.

How did they figure out the fat content? Did someone weigh the butter before and after to determine how much got absorbed into the sunchokes?

I’ve never tried sunchokes and was excited to read the recipe, but vegan or no I would never (knowingly) eat any dish with this much butter and a skosh of pork fat. After two bites my digestive system would go on strike.

The recipe reads as ridiculously gluttonous to me, and so I’m going to go on a mission to find a delicious and healthy sunchokes recipe. There must be a better way. I’ll be sure to share my findings with you.

Note to my MacBook: “Sunchoke” is ONE word — not two. Give a girl a break!

Bike Season!

There is nothing like feeling the weather warming and gearing up for another season on the bike. Yes. I’ve been riding for exercise, and I’ve been riding for errands, but now I’m back to riding for pure fun.

Our calendar is already filling up with events — I even have two next week. Pretty soon we’ll be spending the day riding from rest stop to rest stop, enjoying good company, eating delicious foods (often pie!), and sometimes even listening to live music.

If you have never participated in a bike event in the past, or if you want to troll the internet for some new rides to try, here are some links to start your search.

  • Active.com — Bike, run, walk, swim events, you name it. Active has them all.
  • Specialized Women’s Ride Day — This Sunday the chicks are taking over the roads and trails across the country. Join us! It’s free!
  • Team in Training – If you would like coaching, resources, and teammates to train with, then start here.
  • Livestrong — To me, Livestrong throws the best cycling events around. How could they not with Lance Armstrong at the helm?
  • Tour de Cure — This year Tommie and I will be riding for the first time in the American Diabetes Association’s annual event in Reston, VA. I’ve heard only great things.
  • Bike MS — Friends tell me that the National MS Society hosts an amazing bike ride. They have events EVERYWHERE!
  • Local bike clubs — All over the country there are bike clubs that host rides for all levels of riders every week. In the DC area we have tons of options for rides through the Oxon Hill Bicycle and Trail Club, the Potomac Pedalers, and the Reston Bike Club.
  • Local bike shops — Same thing. Find any local bike shop, and they will not only advertise bike events, but they will almost always offer group rides like the clubs do. Take a look at what these shops are doing: Mellow Johnny’s (Austin, TX), NYC Velo (New York, NY), Cycle World (Miami, FL), Helen’s Cycles (Santa Monica, CA), Revolution Cycles (DC area), and Intown Bicycles (Atlanta, GA).

Have other suggestions? Please share! Nothing is more fun than Bike Season.

Vegans — How Do You Get Calcium?

In January I told you how whenever someone learns that Tommie and I are vegans they ask how we get enough protein. We were caught off guard recently when one of his coworkers asked Tommie a different question. He wanted to know how we get enough calcium in our diets.

Interesting question.

In truth, Tommie and I don’t think much about how many individual nutrients we consume each day. Instead, we live by four simple diet rules:

  1. Eat only plant-based foods.
  2. Eat predominantly real foods (i.e. unsalted, unsweetened nuts and fruits for snacks).
  3. Aim for the most nutrient-dense foods (like the king-of-all-foods kale).
  4. Eat a rainbow of colors each day.

That’s our formula. My diet has grown progressively healthier over the past year — pretty much sticking to our rules — and the only nutritional supplement I take is a daily multivitamin. But I digress. We’re here to discuss calcium.

Renowned researcher T. Colin Campbell tells us that too much protein can result in calcium loss: “High-protein diets — especially protein of animal foods — can cause the body to excrete more calcium than it gets. For example, a person eating 142 grams of protein a day — which some Americans do — will excrete twice as much calcium in the urine as a person taking in a more moderate 47 grams.” To him it’s not only important to think about how we ingest calcium, but also how we retain it, and that translates to: eat a plant-based diet.

While I find Dr. Campbell’s research and conclusions compelling, and the Physicians’ Group for Responsible Medicine (PCRM) certainly agrees, many in the medical community do not (yet) embrace them. Dr. Campbell recommends that we get our calcium from foods like leafy greens and beans, but organizations such as the Linus Pauling Institute and MedlinePlus still say that dairy is the best source.

Whether you are a vegan, pescatarian, vegetarian, or omnivore it’s still important to eat a rainbow of colors each day, so it’s good to know that the following plant-based sources give us calcium too (from PCRM):

  • Collard greens — 266 mg per cup (boiled)
  • Tofu — 253 mg per 1/2 cup (raw, firm)
  • Soybeans — 175 mg per cup (boiled)
  • Dried figs — 140 mg per 10 figs
  • Great northern beans — 120 mg per cup (boiled)
  • Kale — 94 mg per cup (boiled)
  • Butternut squash — 84 mg per cup (baked)
  • Sweet potato — 76 mg per cup (baked)
  • Broccoli — 62 mg per 1 cup (boiled)
  • Brussels sprouts — 56 mg per 1 cup (boiled)

Note: My devotion to this blog knows no bounds. I wrote this post while my kitty Curtie sat on my lap purring, nudging, drooling on the keyboard, and typing in his own thoughts. He’s not a vegan. In fact, he’d like to eat his sister Briscoe right now because she currently smells like the vet. 

Facebook Junkie

There seems to be a running theme to this blog: kicking my pepcid habit, addiction to broccoli and kale, kormaing korma (see: broccoli and kale), and today, my Facebook addiction.

I have an addictive personality. I accept this as a truth and deal with it. I never tried drugs, because I figured with my inherited family addiction gene I wouldn’t be able to stop, but I deal with addiction every day nonetheless.

While immersed in my cancer ordeal, I was hooked on Sudoku. Couldn’t put the puzzles down. Even during medical exams. When I find a food I love, I korma it. And when I participate on Facebook, I can’t stop myself from visiting again and again and again. (Not a pretty picture — I know.)

A little over a year ago I quit Facebook and found peace. One night I was feeling tremendous anxiety from all the noise on the virtual world drowning out the sounds of the actual world, and I said to Tommie, “I wish life could be like it was before Facebook.” Then it hit me — it could! I immediately walked over to my computer and shut down my Facebook account.

A day or so later I started writing my book. I finally had the room available in my brain once again to be creative. After I was mostly done with the “Shitty First Draft” of the book and realized that I had written something that someone other than Tommie or my cats might enjoy, I started learning how to get a book published.

Guess what the number one mandate was for getting your book published (beyond having a book worth publishing): having a reader platform. And guess how everyone says you should build a platform if you are not already widely known: Facebook, Twitter, LinkedIn, etc.

If I wanted to build my platform, I had to get back on Facebook. I had no issue with creating a fan page for my book and linking that to my blog, but in order to do that I had to also reopen my personal account. (I suppose I could have just created a new account and made the book page my sole Facebook platform, but I don’t think I realized I could do that back then. I thought I had to have a personal account and from there I could create business pages. Something to investigate…)

Anyway, the bottom line is I reopened my Facebook account. And I got hooked again. Commenting here, liking that, becoming outraged over an acquaintance’s ignorant posts, checking in at the grocery store, tagging friends, blah blah blah.

And then I lost control even more. I discovered Words With Friends. I wrote last week how I realized I needed to get on my bike more to keep my emotions in check. While that is true I later figured out that I also needed to put down my iPhone and live in the real world more. Do you know how stressful Words With Friends is? I figured I’d play a round or two with a couple people, but the next thing I knew I had ten games going at once and as soon as a game would end each player would start up a new one. There was no escape!

So here we are. Two weekends ago Tommie and I took a Facebook sabbatical. We deleted Words With Friends and Scramble from our phones and we stayed off Book for forty-eight hours. In that time our dear friend Peace returned. We also became extremely productive.

But can we opt out of Facebook for good? I don’t see how. Zuckerberg has set in motion a world-altering device no less necessary and deadly as nuclear science. Our lives are both enhanced and threatened by the creation.

As a junkie, I struggle with what to do. Tommie and I are back online, but this week we’re conducting an experiment. Is Facebook as disruptive if you don’t post anything? Until the end of the day Sunday, we will not post on our personal pages. We can still stalk and even “like” something, but we won’t post or comment and thus feel the burning desire to seek out little red notification boxes.

I wonder if I’ll be able to find a way to exist in two worlds peacefully. It’s possible that my only solution for a healthier life will be to live in a Facebook-free Luddite world, but I’m hoping to find a balance and stay connected.

We’ll see how that goes.

 

My New Addiction: Broccoli-Kale Sandwiches

I discovered Indian food when Tommie and I started dating — chicken korma to be specific.

Growing up I ate your standard dinner of broiled chicken with herbs, a side of veggies, and a salad. I had never experienced an explosion of flavors like the combination of spices, garlic, ginger, and cream in Indian food before.

So for the next six months I went coo coo for curry. Regularly heard conversations between Tommie and me:

“What are you doing?” “I’m having korma.”

Or,

“What should we get for dinner?” “Ooh, let’s have korma!” “Again?”

Then finally one day the thought of eating Indian food repulsed me. I ate it so much that I ate it too much. Korma became a verb. I kormaed my korma.

I’ve kormaed many a food in my life, and right now I’m kormaing Broccoli-Kale Sandwiches. Tommie too. We’ve eaten them at least ten times in the past month. I found the initial recipe from Robin Asbell’s Big Vegan cookbook, but I’ve tweaked her “Fast Broccoli-Kale Sandwiches” recipe to get more meals out of the dish, with tons of flavor and with less fat.

With that, I present to you your next food addiction: Broccoli-Kale Sandwiches. Be careful, though. You might korma it.

What you need:

  • 3 cups broccoli florets (about 1 head)
  • 8 cups chopped fresh kale (about a small bunch)
  • 4 tbsp tahini paste (or to taste)
  • 1/4 cup freshly squeezed lemon juice (To get the most juice out: Microwave the lemon whole on high for a minute. Let it cool. Then slice it in half and squeeze.)
  • 1/2 tsp salt
  • 4 whole wheat pitas, warmed
  • 1 cup cherry tomatoes, halved

What to do:

  1. Prepare a steamer and bring the water to a simmer. Put the broccoli and kale in the steamer and cover. Cook for 3 minutes, until the vegetables are just tender. Drain and cool, then pat them dry with a towel.
  2. In a medium bowl, stir together the tahini, lemon juice, and salt. Add the broccoli and kale and toss to mix. Stuff the pitas with the broccoli mixture and tomatoes. Serve warm or cool.
  3. Tell me this isn’t the best sandwich you’ve made in ages.

How I Kicked My Antacids Habit

A week after the surgeon took out half of my pancreas and my spleen I developed the most disturbing hunger pangs — after I ate. Made me nuts, but I thought it must be a short-term side effect from the surgery and I’d feel better in a week or so. Nope. Not only did the hunger pang feeling stay, but it was joined by a cough.

My gastroenterologist put me on Prilosec — the little purple pill. (Someone’s doing an effective advertising job.) Hunger pangs stayed; coughing got worse. He switched me to Nexium. Hunger pangs stayed; I sprayed spit all over a classmate’s music score when a post-lunch cough caught us both by surprise. I asked my allergist for help. He put me on some kind of cough suppressant for two months. Cough dissipated while taking the meds and immediately returned when they ran out.

I asked my surgeon about the cough and he suggested I try a different gastroenterologist. So I went to a new guy at Georgetown who performed an endoscopy and said, “I think your stomach might not be emptying quickly enough.” (Anyone who knows my story well knows that that was what the first doc said to me when there was actually a tumor on my pancreas and my stomach was just fine.) I smiled, thanked him, and ran away.

A year later I found a new gastroenterologist, Dr. Email. After a nice email exchange he had me come to the office for an exam. Long story short, Dr. Email said that some antacids work for some; some work for others. As my cough and hunger pang sensations definitely sounded like acid reflux symptoms to him, he switched me to Pepcid. Once a day didn’t work, but 20mg twice a day did. Cough gone! For the most part. If I pushed myself to a new level of fitness in the gym or on my bike, or if I ate something really fattening my cough would return.

And so for the last three years I’ve taken 20mg of Pepcid with breakfast and with dinner… until last week.

Remember when I went down to Charlottesville to see the endocrinologist about my blood sugar issues? To level out my blood sugars he suggested I stop eating processed foods like boxed cereals and energy bars and instead eat steel cut oats for breakfast and fruits and nuts for snacks. He also said that he wanted to wean me off of Pepcid.

“I haven’t been able to live comfortably without it since my surgery four years ago.”

“But if you eat healthier, I don’t believe you’ll need it.”

“I eat an extremely healthy diet now.”

“But you haven’t eaten this diet.”

I said that I’d give it a try, and while I believed that his tweaking of my diet would level out my blood sugars, I couldn’t believe that such a slight modification to an already healthy diet would get rid of my cough.

It has. I’ve now gone ten days without coughing, and I’m no longer taking any antacids. Prior to this I haven’t been able to go four hours without a cough since my surgery, so I don’t believe this is a fluke.

When I watch shows like The Biggest Loser or movies like Forks Over Knives I’m amazed to see people get off their statins or diabetes medications by simply improving their diet and exercising more. I’m equally amazed that by eating for the most part only foods that are nutritious and real, I’ve been able to defeat a health problem that stumped three gastroenterologists, a world-class pancreas surgeon, and an ear-nose-and-throat doc.

Friends think I’m sacrificing something by living the way that I do, but they’re wrong. I don’t need butter and wine and pork to live a fulfilling life. I’ve never enjoyed food more, and I’ve never felt better. And now the only pill I take is a multivitamin.

How about them apples!